Câmara Municipal de Vitória da Conquista: Histórias de resiliência e amor no ‘Fala Conquista’ no Dia Mundial de Conscientização do Autismo

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Na edição da quarta-feira (2) do programa “Fala Conquista”, transmitido pela Rádio Câmara – 90.3 FM, os jornalistas Guilherme Barbosa e Andréa Póvoas tiveram como convidados três mães de crianças com Autismo, em homenagem ao Dia Mundial de Conscientização do Autismo. Jaqueline Ferreira dos Santos, Gabriela Pereira Nunes e Neres Valda Matos são integrantes da Associação “Mães de Autistas Unidas” e representam, junto a outras mães, a voz de seus filhos, netos e familiares com Transtorno do Espectro Autista (TEA).

Jaqueline Santos, mãe de um adolescente de 16 anos e de uma menina de 9, ambos diagnosticados com TEA e outros Transtornos, compartilhou sua experiência. Ela menciona o uso de medicamentos controlados e, apesar das dificuldades diárias, se dedica ao cuidado dos filhos, afirmando que enfrenta desafios constantes: “A luta é constante. Em casa, utilizamos 19 medicamentos controlados, dos quais apenas 3 são fornecidos pela Dires (Núcleo Regional de Saúde, órgão da estrutura da Secretaria de Estado da Saúde da Bahia). O restante eu preciso comprar, e são extremamente caros. Além disso, nossa cidade não conta com um Neurologista, o que torna o tratamento particular, com consultas que custam R$ 500,00”, desabafou.

Gabriela Nunes, mãe de quatro filhos, sendo um deles Autista e outro com Microcefalia, expressou sua frustração com a falta de cumprimento das Leis que garantem direitos a elas: “Quero destacar a diferença entre prioridade e preferência. Temos prioridade em qualquer situação, pois nossos filhos não têm a mesma paciência de crianças ‘normais’. Entretanto, em nenhum lugar isso é respeitado. Muitas vezes, somos julgadas, e as pessoas acham que nossos filhos estão apenas fazendo birra ou que não sabemos educá-los. É uma total falta de compreensão”.

Além da entrevista no programa, Nerisvalda Matos, presidente da Associação de Mães Autistas Unidas, utilizou a Tribuna Livre durante a Sessão Ordinária do Legislativo Municipal da mesma quarta-feira. Mãe de um Autista de 31 anos e avó de outro de 10, Nerisvalda Matos destacou que este não era um dia de celebração, pois ainda há muito a ser feito. “Há 31 anos, havia pouca informação. Hoje, temos o a muitas informações, mas falta a implementação de políticas públicas e o apoio do Governo à nossa causa”, reivindicou durante a plenária.

Em sua fala no Fala Conquista, Nerisvalda Matos enfatizou que há muito tempo busca apoio e que seu objetivo é sensibilizar a população e as autoridades sobre a importância da Saúde Mental: “Segundo o Caps IA (Centro de Atenção Psicossocial Infanto-Juvenil), são 4.000 crianças e adolescentes atendidos, mas o Serviço não atende à demanda. O atendimento que deveria ser mensal acontece a cada seis meses. Para que uma criança consiga um diagnóstico, ela precisa ar por múltiplos atendimentos, e muitas vezes o laudo é emitido após anos. Sem esse laudo, ficamos excluídos de diversos benefícios que nossos filhos necessitam. Isso evidencia a urgência da criação de um Centro de Referência para Tratamento de Autismo”.

* COM INFORMAÇÕES DA ASSESSORIA DE COMUNICAÇÃO DA CÂMARA MUNICIPAL DE VITÓRIA DA CONQUISTA

Foto: Ascom/CMVC

7 comentários em “Câmara Municipal de Vitória da Conquista: Histórias de resiliência e amor no ‘Fala Conquista’ no Dia Mundial de Conscientização do Autismo”

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